Summer 1979 “Oh my God! Were you a thalidomide baby?” A gray-haired man stood staring at my disfigured arms and hands. Trapped in the aisle, my heart raced. I had never heard the word thalidomide and had no idea that anything or anyone other than God was responsible...
In spite of the many blessings in my life, I’ve always felt something was missing. I didn’t even know what it was until I found it. Three weeks ago, I had the surreal experience of meeting fourteen other people who share my rare birth defect: phocomelia (deformities...
For more than 45 years I worked hard to hide my physical differences and associated struggles, first by instinct and later as a defense against unwanted attention. Each decade became more difficult until I could no longer hide my escalating physical challenges. It...
Until recently, I did not identify as a person with a disability. When I was a child, I knew deep inside that having an obvious birth defect was a source of shame to your family, even if nobody ever said that. Or maybe because nobody said that. In fact, the truth...
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