Finding Our Tribe: US Thalidomide Survivors

Finding Our Tribe: US Thalidomide Survivors

In spite of the many blessings in my life, I’ve always felt something was missing. I didn’t even know what it was until I found it. Three weeks ago, I had the surreal experience of meeting fourteen other people who share my rare birth defect: phocomelia (deformities...
Coming Out of the Closet as a Thalidomide Survivor

Coming Out of the Closet as a Thalidomide Survivor

Until recently, I did not identify as a person with a disability. When I was a child, I knew deep inside that having an obvious birth defect was a source of shame to your family, even if nobody ever said that. Or maybe because nobody said that. In fact, the truth...
The Real US Thalidomide Story

The Real US Thalidomide Story

Through social media, dozens of “Thalidomide Babies” born or currently living in the United States began finding each other in 2011. Together we are working to correct the false narrative about thalidomide created in 1961 by American drug manufacturers Richardson...