US Thalidomide Survivors (USTS) is a nonprofit organization established in 2018 to support people with injuries caused by their mother taking thalidomide during early pregnancy (day 34 to day 50 after the start of the last menstrual period).
We also welcome people with phocomelia (malformations of the arms and legs) caused by other conditions or syndromes.
Membership is open to people born or currently living in the United States.
Beginning with three people in a private Facebook group in 2016, the organization now includes approximately 60 people born between 1957 and 1964 with birth defects that were likely caused by in utero thalidomide exposure.
Correct the historical record and raise public awareness of the inaccurately reported number of “thalidomide babies” born in the United States.
Advocate for recognition and justice for all US thalidomide survivors, who have only recently discovered their true story in long hidden government records.
Improve access to information and treatment for thalidomide-related medical conditions that continue to worsen as survivors age.
Function as a peer support group for people with thalidomide-induced injuries, and similar conditions, born or currently living in the United States.