New York Times Story Features US Thalidomide Survivors

by | Mar 23, 2020

New York Times US Thalidomide Survivors

The New York Times published a four-part article today about US Thalidomide Survivors. Reporter Katie Thomas, tells the story of a group of people, born in the United States in the late 1950s and early 1960s with birth defects consistent with in utero exposure to thalidomide. After finding each other, the group created this nonprofit organization for their mutual support and encouragement.

Read New York Times Stories

You can read the four parts of the story on the New York Times website.

Part 1

The Unseen Survivors of Thalidomide Want to be Heard by Katie Thomas, New York Times

Part 2

Thalidomide Use Did Happen Here, These Survivors Say by Katie Thomas, New York Times

Part 3

The Story of Thalidomide in the US Told Through Documents by Katie Thomas, New York Times

Part 4

Pursuing an Untold Story of Thalidomide by Katie Thomas, New York Times 

About US Thalidomide Survivors

U.S. Thalidomide Survivors began as a private Facebook group in June 2016. Today, it provides information and peer support for thalidomide survivors born or currently living in the United States. An annual gathering is held in rotating regions of the United States. Members may also participate in groups and events with thalidomide survivors from around the world.

If you believe you or someone you know was born with defects caused by thalidomide, please email info@usthalidomide.org or call 612-440-1920. 
For more information, please visit https://usthalidomide.org/

John Marshall

Most of us participated in a guided tour of the US Capitol Building. Most impressive, in my opinion, was the Rotunda, the infamous domed circular room in the center of the Capitol. The historical paintings i.e., the Declaration of Independence along with the statues and busts of former presidents were impressive. BUT no one could resist looking up!

The conference was a jam-packed three days ending with a “roaming” dinner in the hotel. The term is used lightly, as it turns out, we have a party animal in our midst. Our fearless leader, JoJo Calora, had quite the set-up in his room. He had karaoke goin’ on. He also cranked up the tunes and blasted out heavy metal! Did you know there’s a song about thalidomide? It’s called “Prescribing Horror” by Exodus. You shouldn’t listen to it before you go to sleep. LOL! Fortunately, no neighbors complained, and fun was had by all. Although there was food, snacks, and drinks in three other rooms, people didn’t roam much. JoJo had the fun room! Can’t wait for next year!

Robert Gamble, JoJo and Elizabeth

 

We consider this conference successful! We are moving forward with our campaign and we can’t do it alone. We need YOUR help! Write your senators and representatives! Tell your friends what we have learned. One person could be the link we need to be heard. Be a part of our success story!

Need assistance with this process? Please call our info line (612-440-1920) and we’ll connect you with our legislative committee!