Meet Robin: “What Would It Be Like to be Normal?”

by | Apr 20, 2025

As a child, being aware of my physical difference, it seems I’ve always tried to maintain balance and poise. The older I get, the more difficult it is to be balanced, I’ve gained weight, I’m not as flexible, which only adds to my challenges. Honestly, I’ve lived with some sort of physical pain everyday of my life that I can remember, however, when I was a child, I just thought everyone lived with pain in one way or another, just a condition of life.   

Every one of us are challenged literally everyday of our lives. It is, and will continue to be a challenge living. From personal care, travel, home environment,  social contacts, & recreational activities, we are challenged. Some, more than others.

As I age, I am becoming  more uncertain about what to expect, or what to be aware of  regarding my injuries. I am very grateful to know there are others who share  my fears, who, like me,  are the result of a little pill ingested in my case (nearly 60 years ago), by our mothers, which set our lives on a catastrophic course. What would it be like to be ” normal?” What would it feel like ?  Maybe in the next life I’ll find out.