US Thalidomide Survivors
Most people believe no "thalidomide babies" were born in the U.S. Learn the TruthHow Many Thalidomide babies Were born in the US?
Every source from 1962 through 2019 has quoted an incorrect number of “thalidomide babies” born in the United States. FDA records obtained by a survivor in 2012 suggest that dozens of babies were never identified or officially counted.
The official FDA count released in the 1960s was seventeen thalidomide babies born in the United States. Nine of them were born to mothers who took samples made by American drug companies. Eight other mothers said they obtained the drug in other countries.
We have reasons to believe there were many more. Random House will release a new book in 2022 with the previously unpublished details and suspicions raised by the original FDA investigation.
USTS launches campaign to find survivors
This week, US Thalidomide Survivors launches a nationwide Facebook campaign to try to locate — as many as possible — thalidomide survivors in our country!
The campaign consists of two posts, and asks “Do you believe you are a U.S. survivor of the drug thalidomide?”
A few of approximately 60 Members we have located since 2016
Bonnie: born in Illinois in 1962
JoJo: born in New York in 1962
Jean: born in Ohio in 1962
Gwen: born in Ohio in 1962
Darren: born in Missouri in 1962
Kim: born in Pennsylvania in 1959
Jan: born in Oklahoma in 1962
Tawana: born in North Carolina in 1963
Gianna: born on a US Military Base in 1962
Latest News
USTS to welcome Professor Vargesson as first in our Online Speaker Series
It's time to register for the 1st session of the US Thalidomide Survivors 2020-21 Online Speaker Series! For this 1.5 hour session on 9/19/2020 8:00 AM PDT/11:00 AM EDT/4:00 PM Aberdeen, Scotland Time, we welcome Professor Neil Vargesson. Prof. Vargesson is currently...
Researchers discover a system essential for limb formation during embryonic development
Researchers at the Centro Nacional de Investigaciones Cardiovasculares (CNIC) have discovered a system that provides cells with information about their position within developing organs. This system, studied in developing limbs, tells cells what anatomical structure...
London Times story about US Thalidomide Survivors
The London Times published a story about US Thalidomide Survivors on March 25, 2020
New York Times Story Features US Thalidomide Survivors
A March 24 2020 New York Times story features thalidomide survivors in the United States and their journey for recognition and justice.
New Random House Book to Reveal the True Story of Thalidomide in the U.S.
Coming soon, from Random House, “The Gatekeeper” an award-winning investigative book about the thalidomide scandal of the 1960s by Jennifer Vanderbes.
MERMAID A Memoir of Resilience: Washington Post Review
Read the Washington Post review of MERMAID A Memoir of Resistance
From Our Blog
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Introduction You can call me "JoJo." My name is Jose Martynov G. Calora. I was born in 1962 in Ithaca, New York, with congenital deformities in my upper extremities. I have short arms, no elbows, and three fingers on each hand. The technical term is phocomelia. My...
My Life in Shorthand — Chapter 5
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My Life in Shorthand — Chapter 4
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